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If you have any comments about the Website or you can not find what you are looking for then please contact us.

For further information and advice contact Folk.us

Folk.us
Room 423
Noy Scott House
Royal Devon & Exeter Hospital
Barrack Road
Exeter
Devon
United Kingdom
EX2 5DW
Tel: 01392 403049

Email: folk.us@exeter.ac.uk

Joining the Folk.us mailing list means you will be sent, information about our activities.

Folk.us will work to support and develop patient, service user and carer involvement in health and social care research activities to ensure that those who use services and those who care for those who use services inform and guide research at all stages.

The Folk.us aim remains the same and we retain our status as a 'unique programme', ie there is no other programme that undertakes the work we do. Folk.us supports grassroots involvement in research, the development of policies and strategies for research organisations about involvement and supports services users, patients and carers to be involved with existing research structures; Folk.us explicitly seeks to give agency for service users, patients and carers to collaboratively develop their own research which is rigorous and credible as peer reviewed research.

Folk.us has two roles:

Folk Us
  • To continue working on our own research projects working with local patients, service users and carers, so that we have firsthand experience and knowledge about the issues of involving people in research. Please see 'Our Work' to find out more about these projects.
  • Providing advice and support regarding service user, patient and carer involvement in research, to the Research Design Services across England. This new role is at a very early stage and Folk.us will initially be working with 3 RDS to develop best practice. Our role will be to give hands on advice and help to the RDSs to support their Patient Public Involvement activities and strategies. There is more information on RDSs on the NIHR website.

Our role complements the work of INVOLVE, who lead on national policy advice and guidance regarding involvement across all research structures.


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